Cingles Info

This morning I woke, and I heard someone spoke, of the promises
given to revoke; this incidious disease, which we need not appease,
its silent in its actions, but comes on like a stealth bomber, and
we wonder.?
We live a life of many days of distraught; wondering if our memories
are going to stay in the forefront.?
We need to find a real cure to this disease, as it is playing with
our minds, and let me tell ya its not a tease.
I make no excuses for my cognitive thought disorder, just know that
this is part of the virus I have not overcome; but with this disease
I will fight till the end, because its the only way to learn how to
win?
If your not a sufferer of this disease we call the dragon, but are
aflicted by the patterns of our misbeavin', please understand we are
giving it our best , but we need the medical world to bring to the
forefront the cure.
Iam alone because I believe this disease spent many years effecting
my thinking.
I choose this life to be alone, but I struggle with the lonliness
and sometimes hate to come home, so please understand we didn't just
cop out" altho now Iam dating and getting out;)
Read the information thats out there, that spells it out.
You do have time don't you when your trying to find out; what makes
us so crazy or unstable in our lives, or vulnerable, and too
sensitive and we tend to just cry?
Being too sensitive; well I wonder why we are? We have a virus
running through every part of our minds and livers, and blood as
well, wouldnt you be a bit sensitive, even if you didnt know?
Take time to tell a loved one today you love them as you did before
this dismay. We need to know we are loved as are you, to understand
our disease isnt hard to do.
Comparitively to AIDS or Cancer; many hoover over the patient in
wonder? sadness hits them;the friends,family and all, but because
our disease hcv is so silent you just watch us try to walk tall.
But many of us are worn frazzled and torn, please dont judge the
recipient till you have lived in our shoes, as we are the people
whom have been labeled in this world ; as the ones whom brought this
on, ourselves with our drug living world. Nope not going to buy
that,what a facade; tainted blood is a big mode of contraction that
we had no idea; so please don't judge us, go to the source, be
affirmative and proactive and fight for the Cure, without you non
heppers we will go out in this world.
No rememberences of hero's; heck we dont need that big a movie; but
we would ask that you'd spend some time telling the facts, educating
and advocating and getting the real "truths" out of our
contraction , do it for us will you? As we are worn and tired and
because of the way this disease effects our minds, and to take a
pill won't bring us back to who we were, but your kindness and love,
and steadfastness to visit us, thats what we need , we are at a loss.
We have no promises each day we get up; but I have every symptom of
this illness without a doubt, Iam not able to treat with interferon
based drugs, but I can just sit and wait, till Iam lifted above.
Please understand our cry; its very public and clear; we need your
dearness and understanding not judgements or just sneer, for you see
we live a life you will never understand; its called the life of a
silent virus, going through our homeland.
Iam at a loss of words for how do you feel? when asked? as I act as
if? huh; I'am tired of that.!!! We are people with feelings like the
AIDS vicitims, why do you leave us in the background and tend to
withdraw? are you uncomfortable with the person you see, only look
in the mirror, at the one you could be, a silent advocate whom cares
about the world, one that isnt caught up in the toys, or your own
fun times, take us with you someday give it a try , you might find
out how much more self fulfilling it is to try.!!
Its time to break this code of silence in our homeland, and turn it
around, give us a helping hand. If you turn away thats ok, but we
know whom cares and who's too busy wanting to play.? We need you
healthy people to come with us to the Hill , and fight for the
rights of Hepatitis C and its drill.!!!!!!!!! ~author unknown~